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KMID : 0894920210210010121
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Journal of the Korean Association for Persons with Autism
2021 Volume.21 No. 1 p.121 ~ p.152
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Understanding the social context of behaviors while coping with autism spectrum disorder
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LIim Eun-Chung
Joo Jung-Min
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Abstract
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This study considers the coping behaviors of autism spectrum disorder as social constructs, and explores the experiences of caregivers' choices in the context of interaction with social networks and treatment systems at key points in symptom recognition, service use entry, and compliance. Nineteen caregivers with children born between 2005 and 2010 who had been diagnosed with r/o autism spectrum disorder participated in semi-structured in-depth interviews using the timeline as a visual data. Themes were extracted by thematic analysis. From symptom recognition to service entry, teachers in childcare institutions weighed on suspicion and families on denial. The treatment system expert played an important role in compliance. Since compliance, self-help parents groups that provide various supports have been meaningful, and teachers have played a primary role in promoting drug therapy. Also, the beliefs and attitudes of Korean society to separate and otherize disabilities have influenced the choices throughout the period. For children with autism spectrum disorders to live independently and to be accepted in the community, social publicity and advocacy and policy support focused on individual activities and participation, not symptoms of disability, should be combined. Also, the role of each individual as members of social network is important in accepting and advocating for them.
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KEYWORD
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autism spectrum disorder, illness behavior, service utilization, social network, qualitative study, thematic analysis
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FullTexts / Linksout information
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Listed journal information
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